Disclaimer: I’m referring the the US medical system, but I imagine people in other countries may encounter similar things.
I cannot be the only one who has had this experience, but all my dealings with the medical industry feel like they were refined by a group of psychologists to exploit the weaknesses of those with ADHD.
The volume of calls, appointments, and paperwork I had to full out to get a diagnosis and prescription for treatment is completely unreasonable to expect someone with poor working memory and attention issues to navigate.
Then, to stay on medication, you need to schedule and make appointments with a psychiatrist every month, for the rest of your life, and if you miss a single one, you will run out of meds (and likely charged a fine), which will make it even harder to remember to make the next one. If you miss too many, that psychiatrist will refuse to see you again and you have to go back to your PCP to get a new referral.
Look, I understand that their time is valuable, but this system couldn’t be designed any other way to be more accommodating to people who clinically forget things?!
It’s like designing a wheelchair ramp that’s actually just stairs that are 3x as steep as the regular stairs. Also, if you fall to the bottom, someone takes your wheelchair until you can climb back up.
My biggest fear living in the US was falling off meds and being unable to get back on them. If your life situation allows you should absolutely rely on friends or family for help. You don’t need to do this alone, ADHD is a disability and you’re allowed to need assistance.
100%
It took me years to realize I had it, even more years to get a diagnosis (I was told I had “severe ADHD” btw") and even now, I’m out of medication more often than I have any due to logistical and financial barriers.
Germany here. It’s kind of similar here. The system is rigged against us.
My strategy is to use medication to enable me to build a support structure and learn techniques that help with dealing with symptoms. E. g. meditation, physical exercises that help mind-body connection, CBT, routines, etc. So that when I’m without meds, I can fall back on skills I acquired and trained.
What I also do is hoard medication. Ask for a higher dose or more pills, than I actually need. That way I can miss an appointment and still have enough for the next month or so. I even hide pills in different places around my apartment.
Also in Germany.
There is an ADHD clinic close to me - They sent me a bunch of forms to fill out. Not form-fillable PDFs. They expected me to go to a print shop, print it, fill it out, scan it, and email it back. About 8 months later I ended up just learning how to write texts into PDFs because I kept forgetting and postponing. Now to wait “up to 24 months” for the first appointment, what a joke.
Do it like I did: fail so hard at life that lose your job, lose Bürgergeld welfare, and are in danger of losing your apartment. Have a mental breakdown and go to a psychiatric hospital crisis center.
Do yourself a favor and buy a used brother laser printer. The toner lasts ages and they support universal PCL printer drivers. I bought one new 16 years ago and never bought new toner for it, only paper. It cost less than 100 € back then. Still prints.
Older Brother printers are amazing. I’ve had mine since 2007.
My anxiety, depression, and executive dysfunction prevent me from talking to a therapist and getting a diagnosis. I am so sick of this…
CBD gummies have worked miracles for my depression and anxiety. Depending on where you live, maybe give it a try for a week or two and see what happens?
What dosage are you taking, when, and what type?
These guys work really well.
https://wyldcbd.com/products/raspberry-gummies
They have different flavors, and for me the peach ones work really well
This is the state of U.S. healthcare, homie just prescribed peach flavoring.
I know this is accurate because I also live in this hellhole.
It’s great, isn’t it? I also got laid off at the end of January, lost my health insurance immediately so I had to cancel my gallbladder removal for the next week because I could no longer afford it.
ThE pRiVaTe MaRkEt WiLl SoLvE tHe PrObLeM
I started with a 300mg per bag of 20 (so each gummy would be 20mg each). I would take one a night for a week, every other week (I’d stay sober when with my kids). After a couple of 300, I moved up to 2000 (100mg/gummy).
What brand?
3CHI Gummies
The 2000 is called Pulse. I forget what the 300 was called.
You really don’t need a therapist. You just need a GP that’ll do the questionnaire.
maybe i got lucky, but my psychiatrist is private practice, and she lets me skip every other month and i just text to remind her to fill my meds. she’s great.
oh, and offered to see me quarterly because she is encouraging me to find a therapist and i told her my budget is too tight to add another bill.
…yeah, i think i got lucky.
This is one of the benefits of being on non-stimulant meds, the hoops to jump through are way less (I still had to fight insurance for a prior auth, which took nearly a month). I use an online Psychiatrist (Talkiatry) and have been really happy with my doctor. I also only need to see him as often as we think is medically necessary since atamoxetine can be refilled. It’s been shown in trials to be as effective as methylphenidate and works well for me so far.
The diagnostic piece though is indeed hard, but I can sort of understand that. It’s a pathway to drugs with a high probability of abuse, and no sure fire way to diagnose. So from a liability and care viewpoint I get why psychologists do due diligence in evaluating people (especially adults) for ADHD. It still sucks if you need help, but in theory you only have to deal with that process once to get a diagnosis. Also, as many people have pointed out, many PCPs are willing to fill scripts for controlled substances if needed, especially once you are on a stable dose that you know works. Like many things, the start up is the hardest and it gets easier once you hit steady state.
It’s designed that way, because it has the same effect on everyone. People with ADHD are just starting with a lower capacity for it. The goal is to get as many people to give up on getting what should be theirs in order to “save money”. It’s the same thing you’ll see in certain software when you try to do something they don’t like, for example, opening a link in an external browser, or contacting an actual support representative. Suddenly, this app is really poorly designed! It’s not a bug, it’s a feature
I’ve never had a doctor or therapist take me serious. If I had access to the drugs I could self medicated diagnose better.
As someone with unmedicated ADHD and a severe heart condition, I feel this rant deep, deep in my soul but more for my heart stuff.
You mean I have to call for follow ups every three months and also remember to fill my multiple medications every month or else I am sent on a death spiral? And you also mean to tell me that I can’t take any of the typical ADHD drugs because it might hurt my heart?
Win win.
You guys don’t have repeat prescriptions?
I just order mine on an app when I get a reminder and then pick it up from the chemist a few days later when I get a ping.
I have to go in every year to get refills on my epi pens and my migraine meds. I have to have a doctor sign off on those and I don’t really know why. I am not on ADHD meds but I imagine that would be the same.
Oh yeah… I should probably refill my epipens…
Your use of “chemist” makes me think you’re out of the US.
Most ADHD meds in the US are “controlled substances” and that means our doctors can only prescribe up to three months at a time. After three months we have to have a follow-up appointment, then they can prescribe three more months of meds.
Plus the federal government decided that too many people were taking medications like Adderall. So their “solution” was to instate a cap on how much Adderall manufacturers can make. Which means there’s now a national shortage of Adderall. And that shortage means folks with ADHD are frequently going without their meds entirely or are forced to call multiple pharmacies in the area to ask who has their meds in stock. (My health insurance through work requires me to use a mail-order pharmacy because it means cost savings for them. But that means I don’t have the luxury of shopping around different stores to see who has my meds in stock - at least, not to fill the prescription through insurance and get the lower price. So if the mail order place is out, then I’m screwed.)
Our healthcare system is so fucked.
Adhd meds here are controlled substances too. It makes it so the prescription lasts only a month. But how many packs of meds you have on this prescription, is only set by your doctor. So I get 4 months refills and have to buy it within one month.
And yeah, med shortage over here is an issue too.
Yeah, the DEA wouldn’t allow that. Where I’m at in the US you can only get one month at a time, and most people have to go to the doctors office in person to pick up a physical prescription.
You only have a 3-4 day window before your pills run out to do this, too, so if your pharmacy is out, you’re fucked because most pharmacies won’t just fill a control if you don’t have other prescriptions with them (if they’re accepting new controls at all). All because they’re afraid of the DEA.
I’ve often day dreamed about starting a class action lawsuit against the DEA for discriminating against the disabled.
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I’ve heard it makes reliably getting meds a lot easier if they arent stimulants, so maybe youve got that going for you? 😃
This was for stimulants, I haven’t tried non-stimulants yet, but I am also of a demographic that doesn’t arouse suspicion
I meant shortages, i hear its a nightmare (at least in the US). I’ve got a little over a month to go for an appointment for an initial evaluation 😞
Chances are someone did make it as hard as possible on purpose. US is the source of eugenics…
Shout out to all my spiritual siblings who skip days to stockpile meds because we live in a nightmare world.
Treatment for ADHD is meditation.
Sorry you got downvoted so much, because you’re not 100% wrong. Meditation can actually help with some ADHD symptoms, however
- Meditation can be especially difficult for those with ADHD, because it requires doing the exact thing their brain has trouble doing. If you are able to overcome that hurdle, it can be very helpful—exercising a part of your brain that is underdeveloped. But “just meditate” is useless advice for many people.
- This comes across as dismissive to the original post, which is about healthcare systems not just lacking accommodation, but full of extra challenges for the most vulnerable. There is much more to ADHD treatment than medication. For example, many people, especially those who went undiagnosed, have years of trauma to unravel, and therapy comes with all these same challenges.
I have ADHD. Nothing has helped me but meditation. Of course it’s difficult. That’s not an excuse to not help yourself and treat the symptoms instead of the disease. People are so quick to accept a diagnosis and believe there is something wrong with them that can’t be fixed and use that perspective as a basis to over medicate themselves. It’s completely unnecessary. Regular meditation physically restructures the brain and can remove the abnormalities that cause ADHD. I guarantee not a single person downvoting me has tried meditation in any serious capacity, or done any research on its effectiveness. Imagine if people actually put effort into helping themselves instead of doping themselves with amphetamines!
Shoutout to ADHDcentral. They tried to make the process as clear and accessible as possible. With automated reminders.
What is this? I searched this in Brave search and got like no relevant results.
I’m curious as well. This is the closest relevant result I got, sadly it is for The Netherlands.
